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Wednesday, 25 June 2014

Letter to Lucy Watts from Dr Dan Poulter MP

I got an email through from Together for Short Lives yesterday with this letter attached; I'm going to the Department of Health to meet Dr Dan Poulter MP to discuss my care and how things could be improved! He said as a result of my speech in Parliament and the chat we had that day, and my speech at the Children's and Young People's Health Outcomes Summit (that he spoke at, on a different day), he said he'd like to speak with me. Yet another opportunity to make a difference. That made my day. 

About Lucy Watts MBE

Lucy is a disabled 22 year old young lady with life-limiting complications of Ehlers-Danlos Syndrome. She writes and speaks for a number of charities and runs this blog. She is an Ambassador for Together for Short Lives and Dreams Come True, Trustee for the Pseudo Obstruction Research Trust and is the first Youth Ambassador for the International Children's Palliative Care Network, also working with charities such as Scope and the Council for Disabled Children as well as Association for Young People's Health via the Young People's Health Partnership, the Children's Health and Wellbeing Forum and the Children and Young People's Health Outcomes Forum. Lucy was appointed MBE in the Queen's New Year Honours 2016 for her Services to Young People with Disabilities.
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