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Phone: 1-800-Total-Theme
Address: Las Vegas, Nevada

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Hope For A Diagnosis: My NMCCC Admission March 2018 for a Muscle Biopsy

This week I was admitted to the Neuromuscular Complex Care Centre (NMCCC) at the National Hospital for Neurology and Neurosurgery, Queen Square (NHNN). This admission was for my muscle biopsy, long awaited - I’ve been waiting since 2016, and we…

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East of England Patient Leadership Event – 23rd November 2017

Today I had an absolutely amazing day at the Patient Leadership Workshop Event run by Health Education East of England, East of England NHS Leadership Academy and The Eastern Academic Health Science Network. It was an event to bring together…

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Queen’s Nursing Institute Transition of Care Conference – 10th November 2017

On Friday 10th November 2017 a very special event took place. Hosted by the Queen's Nursing Institute (QNI) with support from the Burdett Trust, the QNI Transition of Care Conference was a great success. It brought together nurses, healthcare professionals…

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Sepsis Survivors: How My Family Has Been Touched By Sepsis

(c) UK Sepsis TrustSeptember is Sepsis Awareness Month and Wednesday 13th September is this year's World Sepsis Day. My family has been touched by sepsis a number of times. We know too well how serious sepsis is. There’s an estimated…

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International Assistance Dog Week 2017 – Lucy & Molly

So, last week (6th-12th August) was International Assistance Dog Week. IADW is an awareness week educating others about Assistance Dogs and what they do and celebrates how they transform lives. Molly and I have done all we can to raise awareness…

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Charlie Gard: A Case With No Winners

Charlie Gard. A little boy whose care has polarised the world. A little boy with a severe condition called infantile encephalomyopathic Mitochondrial DNA Depletion Syndrome. He sadly passed away last week. His doctors for months had wanted to remove his…

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Rare Disease Day 2017 – Do You Care About Rare?

According to Rare Disease UK, rare diseases affect 1 in 17 of us at some point in our lifetime, which translates to 7% of the population being affected by a rare disease during their life. This equates to 3.5 million…

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Molly Awarded the ‘Animal OBE’, the PDSA Order of Merit

In October 2016, on a sunny, day, we had a very important visitor. Jan McLoughlin, Director General at the People’s Dispensary for Sick Animals (PDSA) came round to present Molly with a very prestigious honour. In the same year as…

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