Welcome to the Lucy's Light blog

NHS Peer Leadership Academy: Day 5 (final residential)

Continuing in my series about the NHS Peer Leadership Academy, where you can read the blog about Day 1, the blog about Day 2, the blog about Day 3, the blog about Day 4 by clicking those links, in this…

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My Thoughts On The Future of Hospices 

Recently two people got in touch with me and asked me a question about my thoughts on the future of hospices and hospice care. I spent about 2-2.5 hours thinking, brainstorming, and writing everything down in an email response. However,…

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Personalised Care & Palliative Care: How Can They Help Each Other?

I’ve been writing this blog for a few weeks now but got interrupted by my admission to hospital with sepsis last Sunday. Then yesterday I saw a blog by Tracey Bleakley, CEO of Hospice UK, talking about the very subject…

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2018 Disability Power 100 List: Becoming One Of The Most Influential Disabled People in Britain

This week it was announced that I had been named as one of the 100 most influential disabled people in Britain, on the Shaw Trust Disability Power 100 List.  What is the Disability Power 100 List? The Shaw Trust Power…

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NHS Peer Leadership Academy: Day 4 (second residential)

So, continuing my series about the NHS Peer Leadership Academy, here’s an update on Day 4 (aka day 2 of the second two-day residential, the first residential being in September, the final residential being in November). I am now home…

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NHS Peer Leadership Academy: Day 3 (second residential)

Continuing on with my blog series about the NHS Peer Leadership Academy, here is day three of the Academy. Days one and two took place on 18th and 19th September, and today is day three, tomorrow day four and then…

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IHUG/ESNEFT User Group Celebration & Workshop; 12/10/18

Fantastic day today at the IHUG (Ipswich Hospital User Group) celebration at Ipswich Hospital today where I was giving a presentation and then supporting their workshop afterwards.   In my speech I talked about my work and achievements, how I…

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Hospice Care Week & #HatsOn4CPC

This week it’s Hospice Care Week. All of you know I am a palliative and hospice care advocate having been a beneficiary of such services since I was 17.  You all know my story, being born with health problems and…

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On Turning 25 (Tuesday 2nd October)

On Tuesday 2nd October it was my birthday; a birthday I was not expected to reach. I turned 25; which is at least 2 years longer than I was expected to reach. I’ve lived a quarter of a century! At…

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Receiving my Honorary Degree of Master of the University from the Open University – 21/09/18

On Friday 21st September 2018 I received a prestigious accolade: I was awarded an Honorary Degree of Master of the University from the Open University, for commitment to public services. What an incredible thing to receive, to be recognised in…

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