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Need Support?



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If you are in need of support, please do not hesitate to contact me. 

Email me for support, advice or to ask me anything



Places you can get support:


UK


Pseudo Obstruction Research Trust and their Facebook group


Ehlers-Danlos Support UK


PINNT - Patients on Intravenous and Nasogastric Nutrition Therapy


Together for Short Lives







US/International


Ehlers-Danlos National Foundation


Centre for Ehlers-Danlos Syndrome Alliance


Oley Foundation


G-PACT





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