Writing is a passion of mine and through my illness I have discovered I have a penchant for speaking. I have also been fortunate to do some media work - TV and radio - and I have thoroughly enjoyed it. I hope to have a career the media and journalism industry.
I first came into writing/speaking/media in 2011 when I told my hospice nurse that I wanted to make a difference. She asked if I’d do some filming for the hospice and I said yes; I haven’t looked back since. The short video we made was shown at events and conferences, helping to promote the work of The J’s Hospice and to show the patient’s side of the story. The journalist who did the filming gave me a lot of advice and support, and with her encouragement I started my blog. I got very good feedback about my writing and it sealed the deal for me; I knew then I wanted to be a journalist and wanted (and still want) to publish my story. With now over 80,000 views, it’s fair to say this blog is a success.
In 2013 my hospice nurse put me in touch with the children’s palliative and hospice care charity Together for Short Lives. I was asked if I would speak at their event in Parliament and, despite never having given a speech before, I agreed. For someone who was once painfully shy this was a huge step. So on the 19th November 2013, my mum, hospice nurse, hospice carer and I went up to The Houses of Parliament and mingled with the MPs and important palliative care and hospice professionals. I delivered my speech, finishing to a round of applause, and I knew then that speaking was something I wanted to do. It’s another way I can make a difference; I can’t do much for myself but I can write and I can speak and I intend to put them to good use.
Through Together for Short Lives have come so many opportunities and I have now worked with a number of different charities and organisations. Topics I most often write and speak about - my areas of expertise - include health, disabilities and special needs, healthcare, social care, the transition period (from children's to adult's services), hospice and palliative care, grief, overcoming adversity and my own feelings and experiences. I aim to raise awareness of my conditions and of the struggles the ill and/or disabled face, and to be a voice for those who cannot speak for themselves.
|Me with Dr Dan Poulter MP in Parliament|
Interested in my work? See my services page for more and to contact me.
To read my written pieces, click here.
To read my speeches click here.
To watch some of my media work, click here.
To see my record of achievement, click here.
A list of charities and organisations I have worked with:
Together for Short Lives
Dreams Come True
Pseudo Obstruction Research Trust
Think Local Act Personal
National Council for Palliative Care
Hospice UK (then Help the Hospices)
The J's Hospice
Children and Young People's Health Outcomes Forum
Council for Disabled Children
Ehlers-Danlos Support UK
Essex Coalition for Disabled People (ECDP)
International Children's Palliative Care Network
Transition Information Network
Children’s Health and Wellbeing Forum
Share a Star
Dogs Today Magazine
Courageous Parents Network (US)
Courageous Parents Network (US)
To see what I can offer and/or to contact me go to my services page (here).