I am currently in the process of setting up the Young Adult Complex Condition Alliance (YACCA), a charity for young adults 14+ with complex health needs and disabilities. A user-led charity where two-thirds of the board are young adults or parents of young adults with complex health needs and/or disabilities. We hope to apply for registration in 2020. The project has been in development since first conceived in 2016, but it’s taking time to build up the Trustee Board and working out the logistics and so on.
The website is not yet live, but can be found at https://www.youngadultcca.org.uk.