Today I had a very successful hospital appointment at the National Hospital for Neurology and Neurosurgery with the neuromuscular team, seeing Dr Ros Quinlivan. The outcomes of the appointment could be crucial for myself and my family, and turn everything…
Most people have heard of feeding tubes, seeing kids with cancer and other illnesses with a NasoGastric Tube taped to their face. People know it’s possible to be fed through a tube in your nose down into your stomach. However,…
We’ve all heard of cancer; the dreaded “C”. While there is still much to learn about cancer, and many lives lost to or affected by it, there are lots of charities to support these people and their families and a…
Today is rare disease day. I have a few rare diseases, so jeans for genes day is very important. Ehlers-Danlos Syndrome, though the hypermobility type is becoming more common, is considered a rare disease with a prevalence of 1 in…
We hear about collagen everywhere. So what's all the fuss about?What exactly is collagen and why is it so important?Collagen is the single most abundant protein in the body, making up about 25% to 35% of the whole-body protein content.…