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2019 Review Blog – What A Year!

December 28, 2019
Lucy Watts MBE
advance care plan, advocate, artificial nutrition, assistance dog, awareness, BBC, benefits, Blog, BLOG, budget, care, care package, care planning, Carers, collaborative care, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital, digital legacy, disability, Disability Power 100, disability rights, disabled, DNACPR, doctor, documentary, dog, empowerment, end of life, family, festival, festival spirit, future, grateful, grief, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, human rights, illness, information sharing, Inspiration, interview, intestinal failure, Lasting Power of Attorney, laugh, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, Molly, mother, mum, NHS, NHS Assembly, NHS England, NHS Long Term Plan, nurse, nurses, nursing, Open University, pain, palliative, palliative care, patient activation, patient experience, patient group, Patient Leader, patient network, peer leader, Peer Leadership Academy, personal health budget, personalised care, personalised care and support plan, PHB, podcast, politics, PORT, Power List, pseudo obstruction, Public Involvement, quality of life, rare disease, research, rights, sepsis, sexuality, Shaw Trust, sister, social media, social network, social services, speech, spokesperson, st christopher's, TEDx, TEDxNHS, TPN, transition, unpaid carers, user group, video, vlog, WHPCA, WOMAD, year review, young people
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Well, what a year 2019 has been. Not the best on the health front by any stretch of the imagination, but an incredible year in many other ways. This year is the year I was announced as the 9th most…

Becoming a TEDx Speaker – TEDxNHS 2019

On Friday 4th October, I became a TEDx speaker. I became part of a group of accomplished speakers with an international reach. I ticked an item off my bucket list. I discovered so much about myself. TEDxNHS is an event…

Lucy’s Light Vlog – Come With Me On A Busy Week In My Life (15th to 20th September 2019)

September 28, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, assistance dog, BLOG, care planning, Carers, commissioning, communication, complex needs, continuing health, cope, coping, coproduction, death, deterioration, disability, disability rights, DNACPR, end of life, family, fear, future, grateful, grief, health, healthcare, hospice, illness, information sharing, Inspiration, Lasting Power of Attorney, legacy, life limiting, life threatening, lucy's light, Molly, mother, mum, NHS, NHS England, NHS Long Term Plan, NICE, nursing, pain, palliative, palliative care, patient activation, patient experience, Patient Leader, peer leader, personal health budget, personalised care, personalised care and support plan, PHB, Public Involvement, quality of life, sepsis, speech, The J's Hospice, transition, unpaid carers, vlog, young people
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Come along with me on a week of my life, covering 15th-20th September, in which I had a very full-on time, various Skype calls/conferences, leading a virtual workshop, 3 separate speeches, and an NHS England meeting, and everything I got…

Dying Matters Week 2019 – Are We Ready? Our Short Films

This week it has been Dying Matters Week 2019; 13th-19th May. The theme this year was “Are We Ready?” and what a great theme it is, as we really aren’t ready and we need to be. Dying Matters Awareness Week…

Care of Dying Adults – Blog Adaption Of My Speech

March 24, 2019
Lucy Watts MBE
advance care plan, Advance Decision, advocate, bereavement, BLOG, budget, care, care package, care planning, Carers, charity, chronic illness, collaborative care, commissioning, communication, community nurse, complex needs, continuing health, cope, coping, death, deterioration, disability, disabled, DNACPR, Dr Kathryn Mannix, empowerment, end of life, family, future, GP, grief, health, healthcare, hope, hospice, Hospice UK, hospital, illness, information sharing, Lasting Power of Attorney, life expectancy, life limiting, life threatening, mother, mum, NHS, NICE, nursing, palliative, palliative care, patient activation, patient experience, personalised care, personalised care and support plan, PHB, primary care, quality of life, speech, The J's Hospice, young people
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On Friday 18th January I was invited by Healthcare Conferences UK as part of my role within the Hospice UK People in Partnership Forum to deliver the first speech at their conference titled “Care of Dying Adults in the Last…

#OpenUpHospiceCare 2019

This week it’s #OpenUpHospiceCare week, run by Hospice UK. A successful campaign that seeks to break down myths surrounding hospice care, raise awareness of the amazing work of hospices and to secure support for hospices and encourage communities to get…

Communication in Healthcare: My Experiences & Thoughts

February 10, 2019
Lucy Watts MBE
advocate, Blog, BLOG, care, communication, complex needs, death, deterioration, doctor, end of life, family, future, health, healthcare, hospice, hospital, illness, life expectancy, life limiting, life threatening, listen, mother, mum, NHS, nurse, nurses, nursing, palliative, palliative care, personalised care, speech, The J's Hospice
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This blog is an adaptation of a speech I recently gave at King George Hospital, Ilford, at the Barking, Havering and Redbridge University Hospitals NHS Trust day on palliative and end of life care. It was well received and I…

2018 – What A Year! & Looking Ahead to 2019

December 30, 2018
Lucy Watts MBE
advocate, assistance dog, award, awareness, Barbican, BBC, biopsy, birthday, Blog, BLOG, budget, care, Carers, central line, charity, chronic illness, collaborative care, complex needs, continuing health, cope, coping, coproduction, death, deterioration, diagnosis, digital legacy, disability, disability rights, disabled, doctor, documentary, dog, dog aid, Dr Tedros, end of life, Executive Board, family, festival, festival spirit, friend, fundraising, future, grateful, health, healthcare, honorary degree, honorary masters, hope, hospice, Hospice UK, hospital, House of Lords, human rights, IHUG, illness, Inspiration, interview, intestinal failure, investiture, legacy, life expectancy, life limiting, life threatening, lucy's light, MBE, mitochondrial, Molly, mother, mum, neuromuscular disorder, NHS, NMCCC, nurse, nurses, nursing, Open University, pain, palliative, palliative care, parliament, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, Public Involvement, quality of life, rare disease, sepsis, septicaemia, sexuality, social network, speech, st christopher's, surgery, The J's Hospice, TPN, transition, TweetChat, unpaid carers, user group, video, WHO, WHPCA, WOMAD, World Health Organisation, year review, young people
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What a year 2018 has been. Such highs, such lows, but overall, it’s been an incredible year. I have had such fun, achieved a lot, received recognition for my work, been involved with even more work and projects, I’ve given…

I Have A Mitochondrial Disease: Update On The Search For A Diagnosis

Thursday 15th November I had a neuromuscular follow up with my fantastic consultant Dr Ros Quinlivan at the National Hospital for Neurology and Neurosurgery. I've been seeing Dr Quinlivan after I was referred to the National Rare Mitochondrial Disease Service,…

NHS Peer Leadership Academy: Day 6 – The Final Day

November 14, 2018
Lucy Watts MBE
advocate, artificial nutrition, assistance dog, Blog, BLOG, budget, care, Carers, central line, chronic illness, CIPO, collaborative care, complex needs, continuing health, deterioration, diagnosis, disability, disabled, doctor, end of life, health, healthcare, hospice, hospital, ileostomy, illness, Inspiration, intestinal failure, life expectancy, life limiting, life threatening, mitochondrial, Molly, mother, mum, neuromuscular disorder, NHS, nurse, nurses, nursing, pain, palliative, palliative care, patient group, Patient Leader, patient network, Peer Leadership Academy, personal health budget, personalised care, PHB, pseudo obstruction, Public Involvement, quality of life, rare disease, sepsis, social services, stoma, The J's Hospice, TPN, transition, tube feeding, tubes, unpaid carers, user group, wheelchair, WOMAD, young people
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And so it is, the final day of the Autumn 2018 cohort of the NHS Peer Leadership Academy. This continues with my series in which you can read previous blogs sharing my PLA journey by clicking the hyperlinked text for…