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About Lucy

Lucy Watts MBE is a prominent, award-winning patient advocate, disability activist and lived experienced leader. Renowned for her determination, drive, persistence and her endless desire to help others and contribute to the world around her, Lucy has been recognised many times for her commitment to improving healthcare, access to palliative care (nationally and globally), furthering and upholding the rights of disabled people, facilitating and encouraging patient engagement and co-production, putting sexuality and intimacy on the agenda for disabled people, and much more – she does many different things and loves the variety of the work she does. Lucy is physically disabled and has a progressive, life-shortening illness that is so rare, it could possibly be unique. Never one to let anything hold her back, and a self-confessed workaholic and “pathological overachiever”, she has made a significant contribution to health and social care in the UK, and global work around palliative care and universal health coverage. Lucy strives to ensure her life means something, that it contributes to the world in some way, and that it will be looked upon as “a life well lived“.

Lucy is the Founder/Managing Director of Lucy Watts Ltd, a small business she founded for her Independent Advocacy, PHB Brokerage, Training, Consultancy and Speaking work, amongst other services. Lucy provides Independent Advocacy and care package brokerage services, supporting disabled and chronically ill individuals, and their carers and family members, to access the care, support and services they need to live full, active and enjoyable lives. She also works for Festival Spirit, the charity who provide specialist disability accessible tent accommodation at festivals, doing admin, comms, marketing, grants and fundraising and more.

Lucy is also a sought-after public speaker, especially for health and care events, and for motivational purposes, including giving a TEDx talk for TEDxNHS in 2019. Lucy is able to tailor her style and approach to the needs of every client, practising a form of “consultative speaking” whereby she works with the client to build the best presentation for their event and the audience.

Further to the above, Lucy is self-employed and also owns her own company, Lucy Watts Ltd. She offers a variety of services, including speaking; training services; consultancy; administration; comms and marketing; social media strategy, marketing and management; project management; co-production and group facilitation; and copywriting. She is currently developing some online courses, developing her services, and supporting her growing Advocacy and Personal Health Budget brokerage clientele. She also does a lot of other work, this includes working closely with NHS England and CCGs on personalised care, personal health budgets, palliative and end of life care, transition, patient experience, co-production and as a member of various committees including the NHS Assembly and the NHS England Personalised Care Strategic Coproduction Group, as well as other roles including sitting on regional groups, co-leading research projects, she founded the international palliative care patient and carer advocacy network, Palliative Care Voices, runs various patient and youth involvement groups, and serves as a Trustee for St Elizabeth Hospice in Ipswich.

Lucy received an MBE in the 2016 New Years Honours for services to young people with disabilities, and in 2019 was named the 9th most influential disabled person in Britain in the Shaw Trust Disability Power 100 List. She also received an Honorary Masters Degree from the Open University for commitment to public services, was invited to become a Fellow of the Royal Society of Arts (FRSA) for her commitment to furthering the rights of disabled people, was a Top 50 Patient Leader by the Health Service Journal in 2015, a Community Spirit Finalist at the Women of the Future Awards 2019, a Runner-Up Queen’s Young Leader 2018 and a recipient of the Diana Award (2010) and the Jack Petchey Achievement Award (2010). In 2020, Lucy has also been nominated for the Positive Role Model (Disability) at the National Diversity Awards, and is a top 100 finalist on the Digital Leaders 100 List. Do head over and vote for Lucy for both awards if you feel her worthy. Although, as Lucy says, whilst awards are wonderful and appreciated and she is humbled to be recognised, the only recognition Lucy seeks is that when she reaches the end of her life, she knows her life meant something and she made a difference in the world – awards cannot give her that, only the knowledge and experience of the doing of the work itself.

Lucy lives at home in Essex with her mother and Assistance Dog Molly. For fun Lucy enjoys walking Molly, making videos, photography, writing, learning and researching, reading, listening to music and does enjoy the TV but it is often on in the background rather than the focus of her attention.

Some of Lucy's work highlights:

Delivering a TEDx talk at TEDxNHS 2019. Giving a TED talk has been on my bucket list since I wrote my first ever bucket list, and I never thought I’d achieve it. In 2019, I did just that, and it was incredible.

You can watch the TEDx talk – titled “One Sentence That Transformed My Life” – on the following link: https://youtu.be/Y_j_zmZBvsI

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1109522554 Miss Lucy Watts, MBE. Picture date: Thursday 9 June 2016. Copyright: PA Photos NOT FOR PUBLICATION WITHOUT WRITTEN CONSENT OF PA PHOTOS : 020 7963 7305.
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UK children’s palliative care charity Together for Short Lives announces a report by the APPG on how to improve palliative care for young people.
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