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Welcome

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Get In Touch

Email: support@total.com
Phone: 1-800-Total-Theme
Address: Las Vegas, Nevada

Our Location

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My Work

Current Roles:

Committees:

  • Member of the NHS Assembly (2019-present)
  • Member of the NHS England Personalised Care Strategic Coproduction Group (2018-present)
  • Member of the NHS England Children Complex Needs & SEND Board (2017-present)
  • Member of the Transition Taskforce East of England Regional Action Group (2017-present)
  • Member of the Transition Taskforce North London Regional Action Group (2017-present)
  • Young Person’s Representative for the Ofsted and Care Quality Commission External Board for SEND Area Inspections (2017-present)

Patient Involvement & Palliative Care-related Roles:

  • Founder & Manager of the Palliative Care Voices network (2017-present)
  • Member of the Open University Sexuality Alliance (2013-present) and Founder/Chair of the Alliance’s Young Advisory Group, AdversiTeam (2018-present)
  • People in Partnership Forum Member for Hospice UK (2016-present)
  • Independent (Patient Involvement) Consultant for the Worldwide Hospice Palliative Care Alliance (2017-present)
  • Patient & Young People’s Lead for the Digital Legacy Association (2017-present)

Research:

  • Lead Co-Researcher for the ESRC-funded project Living Life To The Fullest (2017-2020)
  • Co-Researcher for the MAGICYL Dignity Therapy Research Project(s) (2017-present)
  • Patient Reviewer for the British Medical Journal (2017-present)

Ambassador:

  • Ambassador & Young Avenger for Together for Short Lives (2013-present) 
  • Global Youth Ambassador for the International Children’s Palliative Care Network (2015-present)
  • Ambassador for Dreams Come True (2014-present)
  • Ambassador for Include Me TOO (2018-present)
  • Young Ambassador for Dog Assistance in Disability (Dog A.I.D.) and its Young Advisory Panel (YAP) Facilitator (2018-present)

Other:

  • Trailblazer for Muscular Dystrophy UK (2016-present)
  • Member of the Autumn 2018 NHS Peer Leadership Academy
  • Huffington Post blogger
  • Blogger at Lucy’s Light (2012-present)
  • Affiliate Member of iHuman (The Research Institute for the Study of the Human at the University of Sheffield) (2018-present)
  • Patient Partnership Panel Member for the British Medical Journal (2017-present)
  • Director, Lucy Watts Ltd (2018-present)
  • #MedLearn Ambassador
  • Founder of the Young Adult Complex Condition Alliance (YACCA)
  • ehospice contributor 

Former Roles:

  • Trustee of Pseudo Obstruction Research Trust (2014-2019)
  • Lay Member of the NICE End of Life Care Guideline Committee
  • Patient Advisor for the EVASION-CIPO Research Project (Dr Adam Farmer and Professor Qasim Aziz)
012 OU Honorary Degree 5
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