skip to Main Content

Welcome

Say hello to the toggle bar. This is an optional section you can use to display any content you'd like. Simply select a page from the theme panel and the content of the page will display here. You can even use the drag and drop builder to create this! This is a perfect place for your company mission statement, alerts, notices or anything else.

Get In Touch

Email: support@total.com
Phone: 1-800-Total-Theme
Address: Las Vegas, Nevada

Our Location

My Thoughts On The Future of Hospices 

Recently two people got in touch with me and asked me a question about my thoughts on the future of hospices and hospice care. I spent about 2-2.5 hours thinking, brainstorming, and writing everything down in an email response. However,…

Read More

Children’s Hospice Week 2016: A Spoken Poem Video

It’s Children’s Hospice Week this week (23rd-29th May 2016). It’s an annual week-long event and the aim of children’s hospice week is to raise awareness of the services that support children with life-shortening conditions and their families. This year’s theme is…

Read More

The Big Conversation: Thinking about dying won’t make it happen! – Dying Matters Awareness Week 2016

Dying Matters Awareness Week 2016The Big Conversation We all have wishes, preferences and we know what we want. We make our own choices, we decide what we do and when, we make our own plans for our lives, we choose which…

Read More

#HereForThe49000 – A Blog for Together for Short Lives

It’s no secret if you know me that I have a life-limiting/life-threatening form of a condition known as Ehlers-Danlos Syndrome. Sadly, though some people with the condition can lead a normal (or relatively normal) life, for me it has caused…

Read More

Courageous Parents Network Piece

I recently wrote a piece for the Courageous Parents Network about living with a life-limiting/life threatening illness, palliative care, end of life planning and quality of life. It's a brief summary of my journey since becoming ill, the support I've had,…

Read More

It’s Christmas Time

It’s that time of year again: it’s Christmas time. Where has 2014 gone? It seems like yesterday that mum took the decorations down, and now they’re going to go back up again. Christmas is a difficult time for many people for…

Read More

The J’s Hospice Charity Ball Speech

Bev (left), Mum Kate and I22nd November 2014 - I attended The J's Hospice Charity Ball in the role of guest speaker and had a wonderful night. I spoke about my care from The J's and how they have helped…

Read More

The Listening Project: Living While Dying

Earlier this year I went to the BBC studios to do a recorded conversation for The British Library and BBC Radio 4 as part of The Listening Project. It will be archive for many years to come in The British Library. Mum…

Read More
Back To Top