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Meeting 2 of the NHS Assembly: Supporting Carers, Workforce and Environmental Impact

I’ll start this blog with “Happy 71st Birthday NHS!”. What an institution our NHS is, and what it achieves, I’m living proof of the success of our NHS, despite the challenges it faces. If you want to know what the…

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Mid & South Essex Personalised Care & PHB Event – 6th June 2019

Today I co-facilitated an event with the NHS England PHB Eastern Region Lead, Sarah Walker, with the event organised by Sarah, the NHS England Personalised Care Team/Managers and with support from myself. With Essex having one of the lowest uptakes…

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International Day of Persons with Disabilities – 3rd December 

Today, 3rd December, is the International Day of Persons with Disabilities. As a woman with a disability living in the UK, I wanted to write a blog to celebrate this day and talk about some issues that are important to…

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Hospice Care Week & #HatsOn4CPC

This week it’s Hospice Care Week. All of you know I am a palliative and hospice care advocate having been a beneficiary of such services since I was 17.  You all know my story, being born with health problems and…

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Charlie Gard: A Case With No Winners

Charlie Gard. A little boy whose care has polarised the world. A little boy with a severe condition called infantile encephalomyopathic Mitochondrial DNA Depletion Syndrome. He sadly passed away last week. His doctors for months had wanted to remove his…

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For The 49,000 – House of Commons Reception for Together for Short Lives

On Tuesday 7th February 2017, I attended my third event at the House of Commons for Together for Short Lives, with the theme of #forthe49000. The event was hosted by Stuart Andrew MP. A fantastic day was had by us…

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Children’s Hospice Week 2016: A Spoken Poem Video

It’s Children’s Hospice Week this week (23rd-29th May 2016). It’s an annual week-long event and the aim of children’s hospice week is to raise awareness of the services that support children with life-shortening conditions and their families. This year’s theme is…

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Children’s Hospice Week 2015

Children’s Hospice Week, 11-17th May 2015, has almost arrived! Join us in making a difference to the lives of life-limited and life-threatened children and young people and their families in the UK and all over the world. As Ambassador (‘Young…

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Children’s Palliative Care and the NOW Campaign

I know this is slightly different and perhaps not my normal sort of blog post, but this is something that is very important to me.  I have recently been appointed Global Youth Ambassador for the ICPCN (International Children’s Palliative Care…

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