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Get In Touch

Email: support@total.com
Phone: 1-800-Total-Theme
Address: Las Vegas, Nevada

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Home Artificial Nutrition Week 2016

Most people have heard of feeding tubes, seeing kids with cancer and other illnesses with a NasoGastric Tube taped to their face. People know it’s possible to be fed through a tube in your nose down into your stomach. However,…

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Supporting Unpaid Carers: What Happens When A Carer Gets Sick?

I’m not sure why society is not better equipped to support unpaid carers. Why they are so often undervalued. They save the UK on average £132 billion a year, the cost of running a second NHS, so why do we…

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New Years Honours – Lucy Watts MBE

To my wonderful friends, family and supporters, I have a very, very exciting announcement to make: I am now Lucy Watts MBEI have been appointed Member of the Most Excellent Order of the British Empire (MBE) in the Queen’s New Year Honours List!! MISS…

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Merry Christmas, Everyone

Merry Christmas Everyone!Thanks so much for your support throughout this amazing year. I can't quite believe all that has happened, despite the tragedies we have suffered as a family. It started with me writing the foreword to the Difficult Conversations booklet for Together…

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Christmas in Italy Concert in aid of The Wingate Institute – My Speech

I was asked to speak at the Chelsea Chamber Choir's Christmas in Italy concert, the beneficiary being The Wingate Institute, a prestigious, world-renowned research institute dedicated to neurogastroenterology, particularly gut failure. I was asked to speak by my consultant Professor…

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Junior Doctors – Why I Support Them

I am a medically complex patient who spends long periods in hospital, whose care is spread across 7 different London hospitals with about 12 consultants involved in my care, and who relies on and is kept alive by our NHS.…

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#HereForThe49000 – A Blog for Together for Short Lives

It’s no secret if you know me that I have a life-limiting/life-threatening form of a condition known as Ehlers-Danlos Syndrome. Sadly, though some people with the condition can lead a normal (or relatively normal) life, for me it has caused…

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Total Reached, New Chair Is Here – Lucy’s Wheelchair Appeal

WE'VE REACHED THE TARGET! Thanks to your donations and a very big donation from a very generous group of people. Thank you so, so, so much, gratitude isn't strong enough and I cannot say thank you enough - it doesn't…

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Lucy’s Wheelchair Appeal

To my wonderful followers, friends and family, I am writing to you in a desperate situation. I need a new wheelchair but the one I need has a cost of £22,412.39 and we cannot afford this nor will the NHS provide it. So…

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