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More Questions, More Tests But Hopeful For Answers – Health Update 10-11-16

Today I had a very successful hospital appointment at the National Hospital for Neurology and Neurosurgery with the neuromuscular team, seeing Dr Ros Quinlivan. The outcomes of the appointment could be crucial for myself and my family, and turn everything…

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Junior Doctors – Why I Support Them

I am a medically complex patient who spends long periods in hospital, whose care is spread across 7 different London hospitals with about 12 consultants involved in my care, and who relies on and is kept alive by our NHS.…

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Finding Rainbows

Fifty-five thousand. 55,000! That’s how many views this blog has amassed at the time of writing this post. 55,000 people over the past 22 months have read my blog, or at least one of my posts. That’s 55,000 people educated…

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Ehlers-Danlos Syndrome: Are You Aware?

We’ve all heard of cancer; the dreaded “C”. While there is still much to learn about cancer, and many lives lost to or affected by it, there are lots of charities to support these people and their families and a…

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Deterioration, Acceptance, Determination

Recently, my health has deteriorated again. Last year was a fantastic year despite my health and, though I was poorly, I was relatively stable in some aspects. I pushed myself harder than I thought possible to sit up, building up…

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